The Lara Jean Association Inc. has been established to provide support and guidance for families who have had children diagnosed with many forms of rare genetic disorders.
Through no fault of their own these families have been placed in a situation of great hardship and emotional distress.
The Lara Jean Association Inc. was formed after my wife and I were given the terrible news that our 3 month old daughter Lara Jean has Aicardi Syndrome. It is a rare genetic disorder that affects the corpus callosum in the brain causing frequent seizures, it can also cause physical and intellectual delays.
We would like to help other families who are in a similar situation. Our dedication to the needs of these children is completely dependent on your support. Your generous assistance will help lift the spirits of these families in great need.