"The Lara Jean Association has been established to provide support and guidance for families who have had children diagnosed with rare genetic disorders."

Adam Palmer
Lara Jean

Genetic Disorders

Through no fault of their own, families diagnosed with these rare genetic disorders have been placed in a situation of great hardship and emotional distress.

We would like to help other families who are in a similar situation. Our dedication to the needs of these children is completely dependent on your support. Your generous assistance will help lift the spirits of these families in great need.


Ways to Help

The Lara Jean Association Inc. receives no government funding and relies both solely and heavily on the generous support of the community.

Click here to find how your can help support our cause.


Lara's Story

The Lara Jean Association Inc. was formed after my wife and I were given the terrible news that our 3 month old daughter Lara Jean has Aicardi Syndrome. It is a rare genetic disorder that affects the corpus callosum in the brain causing frequent seizures, it can also cause physical and intellectual delays.

About the Lara Jean Association

Our mission at the Lara Jean Association Inc. is to provide support for families that have children who suffer from rare genetic disorders. We aim to improve the quality of life of these children who suffer from rare syndromes.

Our objectives are to raise public awareness of rare genetic disorders and its impact on families.

We aim to provide:

lara and her brother

direct support to families of newly diagnosed babies

funding for medical and scientific research into areas such as rare genetic disorder

help for families to communicate and improve their social and independent living skills

help to fund educational programs

volunteer programs and youth activities aimed at reducting social isolation

on-going support and advice to families on both a personal basis and through information libraries

responses to the needs of support services and groups

valuable information to parents on issues such as social networks and case studies


The Lara Jean Association Committee

Adam Palmer
02 9525 6162

Vice President
Natalie Palmer
02 9525 6162

Tony Damaso
02 8544 0448

Kim Palmer
02 9523 4102


Jemma Martin
0403 256 676

Lachlan Boa
0437 490 637

Andy Morwood
0418 255 752

Helen Sims
0408 027 855

Darren Pike

Lara Jean ready for school

Support the Lara Jean Association with an Annual Membership

Lara Jean in the Garden

Membership is only $10 per year.
Please fill in this form:


Our Major Sponsors

Shoalhaven City Council
chatswood rsl
Wallsend Diggers
Mayfield Ex-Services Club
Penshurst RSL
Canada Bay Club
Randwick Club
McDonalds Pennant Hills

Contact the Lara Jean Association

Fundraising authority numbers
NSW CFN 20902
ACT Licence No L19000407
South Australia Licence No CCP1843
Victorian Licence No 12460
Western Australia Licence No 21428
Tasmania Licence No F1A-608

Main Office:

Lara Jean Association Inc.
Suite 1
7-9 President Ave
Caringbah NSW 2229
Ph. 02 9526 6699
Fax. 02 8544 8071

Nowra Office
27 Fairlands St
Culburra Beach NSW 2541
Ph. 1300 734 892

ACT Office
PO Box 3031
Manuka ACT 2603
Ph. 1300 734 892

VIC Office
PO Box 2050
Hawthorn Vic 3122
Ph. 1300 734 892

South Australian & Northern Territory Offices
Bradley Gill
SA: Po Box 6452 Halifax St Post Shop Adelaide SA 5290
NT: GPO Box 1191 Darwin NT 0801
Ph. 0406 350 263

Western Australia Office
Po Box 8383
Perth BC WA 6819
Ph. 0406 350 263
Fax. 1300 136 028

Po Box 196
Hobart GPO Post Shop Tas 7001
Ph. 1300 784 892